Posted by Jane Harmon on April 02, 2001 at 21:27:34:
In Reply to: Larsen's Syndrome posted by DUPIN Caroline on December 12, 2000 at 15:11:32:
My 17 year old son has Larsen's Syndrome.What would you like to know about Mark?
He has had 19 surgeries so far. We are going to Baltimore this summer to have his right leg lengthen by Dr.Herzeberg. Have you had to have this done? Please let us have some imformation on you.
Mark is also facing having his neck fused later on.
What more will he have to go though?
Mark's Mom,
Jane